It's been a while since we've posted here largely since all recent posts have been tracking Arnold the Cow's progress as he travels around the world. You can read about his fundraising effrots and exploits here:
www.whereintheworldisarnold.blogspot.com
For now, a little more news... We're currently home in the UK visiting family as Annabel's great-grandfather passed away on January 10th at the grand old age of 108 years old. As the last British veteran to have served in both World Wars, his funeral will have all the military trappings and arrangements are being assisted by the British Ministry of Defence. It will be held, and televised, on January 29th, 2009.
Meanwhile, as we prepared for our trip home, Annabel's cardio-thoracic surgeon's office called with a date for Annabel's third (Fontan) open heart surgery. Phew. We can now confirm she will will undergo the Fontan at Albany Medical Center on March 24th, 2009, (with pre-op testing on the 23rd). Despite the sad circumstances of this particular trip home, it is a wonderful opportunity for Annabel to see all our family and friends, especially before we welcome her baby brother into the world around May 24th... So, you could say we are starting 2009 off with a jolt.
In heart research news, a recent Swedish study into the efficacy of pulse oximetry screening has been widely touted in both US and UK medical journals as highly promising for the early detection of congenital heart defects in newborns. Pulse ox testing simply involves clipping a light monitor onto a finger or toe to measure blood oxygenation levels (Annabel's visiting nurses test Annabel like this every 2 weeks and it's about as easy as taking a child's temperature!). The study found s significant increase in the early detection of CHD's compared with simple physical examination/APGAR testing at birth. It's simple, cost-neutral and we have long felt this should be part of the basic evaluation for all newborns. The follow-up issue for medical institutions is really access to equipment and technicians for the administration of a fetal echocardiogram if and when abnormally low blood oxygenation levels are detected. The study recommended re-testing some hours after a low score was detected which weeded out false scores. Overall, it certainly seems like a step in the right direction for dialogue on both sides of the pond.
Wishing you all the best for 2009!
About the Fund
Welcome to Annabel's Heart fundraising page. When our daughter, Annabel, was diagnosed with Hypoplastic Left Heart Syndrome, a life-threatening congenital heart defect (CHD), we learned -- for the first time -- that CHDs are the most common birth defect affecting 1 in every 100 births. Through our experience and research over the past two years we now know much more about pediatric heart conditions, promising new surgical innovations, the urgent need for greater investment into CHD research, and the critical but costly equipment hospitals need to provide such specialized care.
We are fortunate Annabel receives her top-notch pediatric cardiology care from the truly collaborative team of the Congenital Heart Program at The Children's Hospital of Albany Medical Center, in Albany NY. As a result of our experience we have started Annabel's Heart Fund with a commitment to two key fundraising goals:
Hands on Hearts
Funds to purchase medical "wishlist" items so state of the art technical equipment is available to the experts who need it. We are currently committed to supporting Albany Medical Center: The Children's Hospital in the expansion of their Pediatric Congenital Heart Program. Donations will purchase selected items from their "wishlist".
Hungry Hearts
Funds to support innovative research projects for the early identification and treatment of congenital heart defects. We will allocate funds in support of promising research initiatives.
How it works
Rome wasn't built in a day. We have set ourselves a $10,000 target which we are breaking into bite size fundraising initiatives. Starting us off, a close friend ran the Marine Corps marathon on Oct.26th, 2008. Beginning November 1st, Annabel's favourite cow, Arnold, will embark on a trip around the world. And down the road, we see a summit ascent in Susie's future... The key is sponsorship. You sponsor us and we'll keep you entertained with blog photos and reports on each fundraiser! So please give generously, give often, and spread the word so that we can meet our goal.
We thank you for your support and for sharing this site with your family and friends. Help us reach a wider audience and spread the word.
- Susie, Seth & Annabel Powell
Coming soon... www.annabelsheart.com
We are fortunate Annabel receives her top-notch pediatric cardiology care from the truly collaborative team of the Congenital Heart Program at The Children's Hospital of Albany Medical Center, in Albany NY. As a result of our experience we have started Annabel's Heart Fund with a commitment to two key fundraising goals:
Hands on Hearts
Funds to purchase medical "wishlist" items so state of the art technical equipment is available to the experts who need it. We are currently committed to supporting Albany Medical Center: The Children's Hospital in the expansion of their Pediatric Congenital Heart Program. Donations will purchase selected items from their "wishlist".
Hungry Hearts
Funds to support innovative research projects for the early identification and treatment of congenital heart defects. We will allocate funds in support of promising research initiatives.
How it works
Rome wasn't built in a day. We have set ourselves a $10,000 target which we are breaking into bite size fundraising initiatives. Starting us off, a close friend ran the Marine Corps marathon on Oct.26th, 2008. Beginning November 1st, Annabel's favourite cow, Arnold, will embark on a trip around the world. And down the road, we see a summit ascent in Susie's future... The key is sponsorship. You sponsor us and we'll keep you entertained with blog photos and reports on each fundraiser! So please give generously, give often, and spread the word so that we can meet our goal.
We thank you for your support and for sharing this site with your family and friends. Help us reach a wider audience and spread the word.
- Susie, Seth & Annabel Powell
Coming soon... www.annabelsheart.com
Wednesday, January 21, 2009
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The Back Story
- Annabel Powell
- Hi! I'm Annabel. I'm in fifth grade at The Doane Stuart School. I live in Upstate NY and go home to England to visit family often.
1 comment:
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